So when I did the My Life on Drugs post I knew little about making infographics. In fact I was struggling to call it an “infographic” or a “data viz” or just a chart. I still don’t know what exactly I should call it. But I’ve learned a thing or two about the quantitative display of information. I’ve studied Beautiful Evidence and Visual Display of Quantitative Information both by Edward Tufte. Continue reading
Crohn’s Treatment Case Study
I’m a squandered data point and so are you. It’s probably safe to say most every patient’s value isn’t exploited. We become isolated consumers of anecdotal value in the mind of our physicians. But we shouldn’t be squandered data points! We posses the most important data of all – namely our quality of life after treatment. Following and tracking data should be a priority for healthcare providers. For after-all how can anyone really know if the treatment was helpful or harmful? Continue reading
My Drug Induced Psychosis
After my first diagnosis I was given a set of drugs which almost killed me. They worked for taking care of inflammation and pain. But one of these drugs caused me to appear mentally ill. It’s called “drug induced psychosis”. Continue reading
Posted in A Crohn's Disease Story
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Creating Health Record Visualizations
I like visualizations of information. It should be considered a form of literacy. And as for our medical records – there should be almost nothing but visualizations along with short but detailed descriptions using text intertwined with charts and pictures and the results of scans and diagrams and x-rays and on and on. Our health records should be robust visual documents. Continue reading
Posted in DIY Electronic Health Record
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My First Colonoscopy & Diagnosis
My cab ride ended at St. Joeseph’s Hospital in the Lincoln Park neighborhood of Chicago, IL. I explained I’d just been given orders from a Physician’s Assistant to come directly to the closest emergency room. And that was taken very seriously. I was quickly admitted and as I recall I didn’t spend much time in the E.R. Continue reading
Posted in A Crohn's Disease Story
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Commentary on 10 Years of Crohn’s Disease
The infographic is a work in progress. It’s a history, a case-study, a critic, a protest, and an attempt at a more holistic health record. Continue reading
Infographic:10 Years of Crohn’s
In honor of Crohn’s and Colitis Awareness Week (Dec 1 – 7, 2011) I’m releasing this history of my Crohn’s.
Click on image to enlarge.
IBD vs IBS Venn Diagram
I’ve been meaning to do this for weeks now and I just saw a tweet about someone wanting a Crohn’s disease tee-shirt to raise awareness. Since I made one for myself using Cafepress.com I figured I’d share the tee-shirt and release the art under the creative commons license. This is at least raising awareness that IBD is not IBS.
IBD vs. IBS Venn Diagram by Kenneth Spriggs is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 3.0 Unported License.
Based on a work at www.diyehr.com.
Here ya go:
Posted in Rants
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