wow very impressive. I’m at a point where I started collecting all my old medical data from all my specialists and started recording what medicine i take on daily basis by building Google forms. Hope to draw conclusions and summaries soon that might prove useful. Do you think it’s helped you process what you’ve been through?
Kss
Hi Belinda, Thanks for the comment. I think it helps quite a bit. There’s certainly some conclusions I’ve come to about treatment. One is that surgery is something that should’t be delayed and the hype about biologics probably isn’t as honest as it should be. And then there’s diet – that’s been a big deal for me. I also stopped azathioprine about a year ago and I’ve never been better.
But in terms of adding value to others I think publishing what you go through would be wonderful. So please do – even anonymously would be great. A lot of people read crohnsforum and we’ll all probably be on crohnology in the next few years so…
Rihan Meij
Brilliant, having data I think helps you make more informed decisions
Cd
This is awesome!!! Especially the part, “# of health insurance papers that say “Not a Bill”. Love that part about my own Crohn’s I hope this got out to a bunch of people, its great I’ve got a blog too, but haven’t written since I had my baby. Worth checking out though. Just google “so they say i have crohn’s” if you’re interested.
ksspriggs
Thanks. I don’t think a lot of people have seen it yet. I’d like to figure out a way to get a wider audience. Still working on it all…
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